ICU sedation, delirium & recovery

Discussing expected long-term quality of life in the ICU: effect on experiences and outcomes of patients, family, and clinicians—a randomized clinical trial

Intensive Care MedPublished Randomised controlled trial

Authors' conclusion

Incorporating personalized predictions of long-term QoL in family meetings had no measurable effect on patients' and family members' experiences. However, a positive effect on family members' symptoms of depression and ICU professionals' experienced collaboration was observed.

Study context

Population
Adult ICU patients and their family members, and ICU clinicians
Participants
160 patients
Comparison
Discussing expected long-term quality of life (QoL) at an ICU family meeting vs usual care
  • Interventionn = 81
  • Usual caren = 79reference
Primary endpoint
Patient and family experience with shared decision-making (CollaboRATE, range 0-100)
Follow-up
< 3 days after the family meeting
Methodological detailstwo Dutch hospitals
  • Two Dutch hospitals

Primary result

As reported in the abstract

Intervention

89

median · IQR 85–100

Usual care

93

median · IQR 85–100

P = 0.6

Secondary outcomes

Mean

OutcomeInterventionUsual careP value
Increase in family members' depression symptoms · 1 year post-ICULarger increase in the usual care group0.2 (SD 3.9)2.3 (SD 4.2)P = 0.04

Patient outcomes

The outcomes of patients did not differ

ICU professionals' CSACD score · post-intervention

Improvement in CSACD score post-intervention: median 40 [IQR 34-45] vs 37 [IQR 32-43]
P = 0.01

ICU professionals' EDMCQ

No significant change in EDMCQ

Original publication

Discussing expected long-term quality of life in the ICU: effect on experiences and outcomes of patients, family, and clinicians—a randomized clinical trial. Intensive Care Med. Published 24 February 2025. doi:10.1007/s00134-025-07812-5

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