Paediatric anaesthesia & critical care

Tools Measuring Health Literacy in Critically Ill Patients and Their Caregivers: A Scoping Review

Crit Care MedPublished Scoping Review

Authors' conclusion

Although several health literacy tools exist, they often focus on individual knowledge of specific aspects of ICU care, with less attention to how understanding is produced within the clinical context through interactions among patients, caregivers, and healthcare providers. This may limit their ability to reflect how health literacy functions in critical illness. Assessment of health literacy requires pairing the appropriate tools with interaction-focused approaches to guide communication and support informed decision-making in ICU settings.

Study context

Population
Critically ill patients and their caregivers in the neonatal ICU (NICU), PICU, and adult ICUarticles included, describing 84 health literacy tools
Participants
92 patients
Outcome
Health literacy tools by domain measured

Main finding

As reported in the abstract

Topic-specific clinical knowledge (e.g., organ donation, cardiopulmonary resuscitation)
n = 24/84, 29%; NICU: n = 9; PICU: n = 1; ICU: n = 14
ICU prognosis, diagnosis, and treatment
n = 23/84, 27%; NICU: 6; PICU: 3; ICU: n = 15
Neonatal and parenting
n = 13/84, 15%; all NICU
General health literacy abilities
n = 11/84, 13%; NICU: n = 6; PICU: n = 2; ICU: n = 7
Information needs
n = 4/84, 5%; NICU: n = 1; PICU: n = 0; ICU: n = 3
Readiness for discharge
n = 3/84, 4%; all NICU
Decision-making
n = 3/84, 4%; all NICU
Health-related behaviors
n = 2/84, 2%; NICU: n = 1; ICU: n = 1
Research participation
n = 1/84, 1%; NICU

Original publication

Tools Measuring Health Literacy in Critically Ill Patients and Their Caregivers: A Scoping Review. Crit Care Med. Published 14 October 2026. doi:10.1097/ccm.0000000000007382

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