ICU sedation, delirium & recovery
Development and initial testing of an illness perception questionnaire for substitute decision makers of critically ill patients: a mixed methods study
Authors' conclusion
We observed a modest level of correlation of the IPQ-SDM score with clinical measures in the adult ICU setting.
Study context
- Population
- Substitute decision makers of critically ill patients, approached 3 days after intensive care unit (ICU) admission44 complete responses
- Participants
- 50 participants
- Exposure
- Died in hospital vs Discharged alive
- Died in hospitaln = 13
- Discharged aliven = 31reference
- Outcome
- Illness Perception Questionnaire for Substitute Decision Makers (IPQ-SDM) total score
- Follow-up
- 3 days after ICU admission
Methodological detailsprospective observational, questionnaire development
- Prospective observational
- Questionnaire development
Main finding
As reported in the abstract
Complete responses
43
mean · SD 11
- Correlation of total score with NEMS (P = 0.005)
- 0.42
Observational data: associations, not effects.
Further findings
Mean
| Outcome | Died in hospital | Discharged alive | P value |
|---|---|---|---|
| IPQ-SDM total score by hospital outcomeHigher (worse) score in those who died | 48.2 (SD 9.7) | 40.5 (SD 10.2) | P = 0.03 |
Concern regarding the illness
- Spearman ρ with multiple organ dysfunction score (MODS)
- 0.39 (P = 0.01)
- Spearman ρ with NEMS
- 0.29 (P = 0.04)
No in-person visits due to COVID-19 restrictions
- Respondents reporting no in-person visits
- 46%
Original publication
Development and initial testing of an illness perception questionnaire for substitute decision makers of critically ill patients: a mixed methods study. Can J Anaesth. Published 18 March 2025. doi:10.
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