ICU sedation, delirium & recovery

What measures have been used to explore the outcomes of family members of critically ill patients: a scoping review

Intensive Care MedPublished Scoping review

Authors' conclusion

We identified 388 studies which reported the outcomes of family members of critically ill patients. Over 200 different outcomes measures were utilised, exploring conceptual domains such as quality of life as well as psychological and social outcomes. The majority of studies were observational in nature with variable follow-up timelines.

Study context

Population
Family members of critically ill patients; articles published 2000–2024 (Medline, PsycINFO, Scopus, CINAHL, Web of Science)
Participants
388 family member cohorts
Outcome
Outcome measures used in family outcome research

Main finding

As reported in the abstract

Outcome measures used
Different outcome measures used
218
Studies measuring emotional or psychological outcomes
345 (89%)
Studies measuring family experience outcomes
85 (22%)
Studies measuring general functional status, quality of life or well-being outcomes
65 (17%)
Studies measuring environmental or social outcomes
35 (9%)
Studies measuring cognitive outcomes
10 (3%)

Further findings

Study designs and setting

RCTs
59 (15.2%)
Observational cohorts
287 (74.0%)
Quality improvement programmes
8 (2.1%)
Non-randomised controlled interventional studies
34 (8.8%)
Undertaken in USA, Canada and Europe
n = 264, 67.5%
  • 9873 abstracts reviewed

Original publication

What measures have been used to explore the outcomes of family members of critically ill patients: a scoping review. Intensive Care Med. Published 12 August 2025. doi:10.1007/s00134-025-08072-z

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